Just a heads up that it's now been five years since I started LDN. After it stopped my illness progression and I regained a lot of lost functionality my life took a turn for the better. In the last few years I've got married, moved abroad and had four books published, including a novel. One by one my dreams have come true.
I'm now being tested to see if I have Lyme disease (I've had some antibody tests in Finland, but nothing reliable), I should have the results next week. If the results are positive, I'll try to post here at some point. If I did turn out to have Lyme as well as CFS/ME, it would be good news for people with Lyme I guess, since usually it's thought LDN isn't as helpful for Lyme as it is for CFS/ME.
P.S. I was supposed to post this already last year, but please avoid the International Biomedical Center at Leende (places with the same name in other Dutch cities are fine). Yes, they do prescribe LDN if they feel like it, but they also lie to their patients and their lies really endangered my health in the spring of last year.